Ever since that very first day Makaylah had a seizure I worry about both the girls alot more. I wake up many more times in the middle of the night and just check up on the girls to make sure they are both OK. There has been many times where it crossed my mind... what if Lani ends up having one then what? would I be able to handle it if both my daughters were going through that. One of my biggest fears is that ill be sleeping and I wont be there to help them.
Like I said Makaylah hasn't had any seizures since I believe June but we have notice a change in the way she acts and behaves. Alot of that we think has to do with the meds shes on. she is not the little girl I remember before it all started. she was a very calm, happy, never really fussy little girl, always smiling. there would never be a day that went by that she wouldn't be happy and smiling, that has all changed. she gets upset very easily, gets very fussy, and pulls my hair and her little sisters hair every single day. we have taught Lani not to hit makaylah or push her away when makaylah does that to Leilani instead we tell her to move away from her and go somewhere else. when Makaylah gets mad at herself she will bite her hand and sometimes pull her own hair and this happens almost every single day some days are worst then others. I wish she was able to tell me whats wrong but she doesn't really talk she knows about 10 words and some sign language so its very hard to find out what she wants or figure out if something hurts.
she was born November 4, 2007 she was 7lbs 3oz. no complications at birth and a natural birth. The doctors don't really know why Makaylah ended up having cerebral palsy but, i did have a little accident when i was about 7 or 8 months. I had fallen down two steps and landed on all fours i don't remember if i hit my tummy when i fell but i do remember my hands caught the fall. i wasn't in any pain but i was so scared something happen to her that i called my doctor. Since i was in no pain or not bleeding that there was really nothing they could do so i should just wait to be seen at my next doctors appointment. when that day finally came they still didn't see anything wrong with her or me so they couldn't do anything and they told me i shouldn't worry about it. I guess maybe they were wrong but no one really knows.
Lani on the other hand was born march 11,2009 9lbs 4.2oz no complications but i did have to get an epidural because i really couldn't take the pain i was trying to wait as long as i could but also because Jon kept asking me "are you sure..are you sure...BABE.. ARE YOU SURE " lol later on he told me that he was just making sure i was sure so later on i wont say you never said anything and give him a hard time about it :) i will admit that i was so scared that something would be wrong with leilani too. thank goodness there wasn't anything wrong, very health baby. leilani was a fussy little baby totally opposite from makaylah when she was a baby. She is very smart and independent some times to independent. she likes to do so many things on her own and I'm not use to that at all because I'm use to doing everything for makaylah that i want to do the same for leilani. she counts to 10 and almost knows all her ABC! My little helper, i call her.. she helps me with makaylah. she brings me Makaylah's shoes and her AFO'S (leg braces) and helps me push makaylah when we have to take her to the doctors. Leilani has taught her sister so much and is still teaching her so much every single day, I can just imagine how much more Makaylah will learn from her little sister.
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