Monday Monday Monday!!! hope you guys had a great weekend..well my weekend started off really bad but, Saturday night was great we went to a birthday party(happy birthday Cali!!!) wish we could of stayed longer but makaylah was getting to hot so we had to go home and cool off. Sunday was just a relaxing and a fun day..
I love watching the girls play with there dad it brings great joy to my heart. In this picture Jon was playing a video game and the girls wanted to do what daddy was doing it was so cute!!!
Jon likes to bug Lani just so he can hear Lani say "no no don't do that!" its so cute and funny. She is talking so much it seems like everyday she is learning a new word and i love it! I even catch makaylah trying to talk to Lani in her own baby language and Lani talks right back like if she understands every single word makaylah says. It was makaylah that taught leilani to say don't do that. Makaylah started saying those few words a few months ago when ever she didn't like something, doesn't want to do something, or just gets mad at us. I'm happy that Lani is talking more because I'm hoping she will be the one to teach makaylah to say more words that would be awesome but only time will tell.
Today has been a pretty good day, makaylah went to school and Lani cried. If Lani wakes up before makaylah goes to school she starts crying when ever she sees her sister leaving because she wants to go with her. i always tell her "sista will be back don't worry" (she calls her sister sista) then she smiles and stops crying. I try my best not to wake Lani up because i don't want her mornings to start with crying but its hard when my girls share a room and the first sounds of Makaylahs mouth when i wake her for school is just giggles then busssss bussss. the school bus picks her up right in front of our home so when i ask her " u going to school?" she says "bus bus". When i do get monkey off to school before Lani wakes up, Lani looks and looks for Makaylah. but doesn't cry at all. Those days i find she is in a better mood then the days she cries in the morning.
Friday is almost here! hope everyone is having a good week if not hopefully u have a better weekend. well I'm having a pretty good week. A lot of screaming(Lani), hair pulling(makaylah), and just throwing fits (Lani and makaylah). Right now it seems like leilani is the one throwing more fits then Makaylah but when its both of them it gets very difficult to calm them down. Makaylah gets mad cause I'm trying to make Lani stop crying then Lani gets mad because I'm trying to calm monkey down and I'm not paying attention to her. So i distract them by doing something funny to get both of there attention...
Every morning now when leilani gets up from bed she stands in her door way and yells out "HELLO!" "HELLO!""HELLO!" if i don't respond with a hello she will keep doing it till i say hello back, then she goes to my bed with a diaper in her hand and tells me in her baby language to change her then climbs right under my covers and goes back to bed. Its so funny i just wish instead of bring me a diaper to change her she would just tell me she needs to go so i can take her to the bathroom. she was doing great about using the potty but just one day she got so scared when she got on the toilet for no reason at all. From that day on she will not use it anymore. Someone told me to take her into the bathroom when i need to use it so she can see what I'm doing then that way she will want to copy me but all she wants to do is flush when ever I'm done lol. she even says "Flush?" Hopefully she will want me to take her in the bathroom again so she can use the toilet.
Well speaking of Leilani, yesterday we ended up having to go to Petco to buy dog food (we have a pit bull his name is Homer and a dachshund his name is Moe) and a new toy for lulu (our kitty). well anyways whenever we go out Lani likes to take either her plastic colorful cups, her toy piano, or another toy that I'm not sure whats it called but pretty much has a bunch of numbs and colorful beads on it, so Lani decided she wanted to take her cups and these are those plastic cups you use for party's or an event like that, we get there and start looking at all the birds, mouses, hamsters, and lizards and she ended up setting her cups down somewhere i didn't even see where she put them we where in line to pay and she saw a pen with feathers on it so she wanted all the ones in the box so i just gave her one and put the rest back well she through a fit because i didn't get all of them. Another reason why she wasn't even thinking about her cups so we had no idea she didn't have them till we had gotten home. she kept looking and looking in the car for them and they just weren't there so she was very upset. it was already time for bed so i got the girls ready for bed and Lani was still crying and screaming for her cups so i told Jon that i was going to go to the store and see if i can find any will it was almost 9pm so i went to Albertson but all they had were the red and blue cups that wasn't going to cut it so i drove to the dollar tree store and they had them i bought four different colors cause they didn't just have a pack with different colors, i had barely made it before they closed so i hurried back home and was already sleeping she had cried herself to sleep :( well this morning i made sure i had put the plastic cups somewhere were she would see them and sure enough instead of a "HELLO!" "HELLO!" i got i very loud giggle, laugh, scream. I knew she had found them. she ran to my room and just laid right next to me.:) Ill do anything for them even if its just some cheap plastic colorful cups.....
Yesterday was our 6 year anniversary! Its crazy to think about everything that we have been through. And let me tell you its alot! lol but i wouldn't change it i really believe everything happens for a reason, I'm so in love with this man! He has given me my girls and has taught me so much.
Its kinda funny how we met and it always brings a smile to my face when i think about it.... I had just celebrated my 20th birthday. i spent my birthday with friends and family but the night of my birthday i remember i was outside looking up at the stars (if your from the desert, like i am from the palm springs area, you know how bright those stars are they are beautiful!)when all of a sudden i saw a shooting star so i made a wish. i know its so cheesy but so many bad things were going on in my life at the time the only good things were my job that i loved and school so i thought why not? my wish was i just want to be happy and have someone special in my life. who would of thought my wish would come true three days later.
who here remembers Myspace? yes there once was a day where myspace was once popular before it got invaded with lots of spam profiles and alot of little kids. well anyways before all that happen i had received a message from a very handsome man wearing a red t-shirt in his profile picture :D i don't ever write to people that i don't know and meet online because there is alot of bad people out there but for some reason i had a feeling that i should just say hello so i did we kept talking back and fourth for a couple of weeks when we decided to take it to the next step and talk on the phone. Then finally we decided to go on our first date he ended up taking me to the OC (orange county) fair. i had so much fun and he was such a gentleman. It felt like i had known him for so long. i even got him to go on some rides, for everyone that knows Jon he doesn't do fair rides but he does do Disneyland rides lol but anyways i could totally tell he was nervous and i had asked him we really don't need to go on any rides but come on what guy would say no so we went on almost all the rides. we finally left the fair an hour before they closed and decided to take a walk on the beach. Man it was so romantic, from that day on i had fallen madly in love with Mr. Jonathan Ruiz. I love you babe....
I love the fact that i got to really know him over the Internet and over the phone before we actually met. We would talk for hours. He would drive from riverside to palm springs on his days off just to see me. He has done so much for me and has been there for me when i was at my lowest. thank u babe for everything u have done and do for our family.
yes! its Friday! hope everyone had a great week. Well makaylah looks like shes getting over her cold and I'm so happy because she got sick without having any seizures. The only bad thing now is Lani has a runny nose :( so now time to take care of her. My poor girls but that usually happens when someone is sick in the household everyone ends up getting sick no matter how hard u try to stop it. So we will see how it goes tonight.
Whenever the girls get sick it makes me think of the past...
Lani had gotten sick and couldn't keep anything down that i had to take her to the hospital because i was worried about her not eating and the high fever she was having so we waiting so long (urgent care was already close cause it was late)just for the doc to see her for 5min. just to give me some pills for her to calm her stomach up and sure enough it worked and she was feeling a lot better the following day. I'm so glad i breastfeed her for about 1year. yes i said one year lol. i also did that with makaylah too but she still gets sick alot and very easily. maybe when makaylah gets older it will change only time will tell.
i had mention in my past post that makaylah has been in and out of hospitals, man i cant believe she has visited that place more then me and shes just 3! well i was thinking about one of the days makaylah was there we shared a room with a women and she was there with her 2yr old little boy. she told me her story about why she was there with him and all i can say is it only takes a min. that your not paying attention for something bad to happen. but thank goodness he ended up being OK and they actually left the following day.
i want to say thank you to all the nurses everywhere...if it wasn't for you guys, stays at the hospital would be very difficult. every nurse that i have met has been wonderful with makaylah and myself you guys rock! Hope everyone has a safe and fun weekend....thank you guys for your time! I'm so excited for tomorrow its Jon and i 6year anniversary!
Last night was one of those very very long nights. It always makes me think of the nights I would spent awake at the hospital, watching over Makaylah. those hospital chairs are so uncomfortable and there was always never something good to watch on t.v. Last night Makaylah ended up having a low fever and a runny noise, So she couldn't really breath out of her nose, she was having a hard time falling asleep. I tried my best to clear her nose out but she really hates that so its so hard to do it to her. one day i got curious and used the suction bulb on myself to see what she felt and let me tell you it feels so weird! So I can totally tell why she doesn't like it. When she finally fell asleep I kept hearing her move around alot in her crib(yes she still sleeps in a crib because we feel its safer for her since she has seizures plus she loves her bed) each time i would hear her i would get up to check on her. I don't even remember how many times i got up all i know is I'm very tired. 4am rolled around and i was up couldn't fall asleep i was just laying in bed i finally got up out of bed at 6:30am and makaylah had a fever again. I know every single mom and dad out there if they could would change places with there child when ever they are sick or hurt cause i know i would! i hate seeing my girls sick it kills me inside so much.
Its about noon and she hasn't had a fever since this morning and I'm so happy to say she didn't have a seizure before she ended up getting sick so I'm assuming her meds are working to control that and I'm hoping she still doesn't have any. Lani can tell makaylah is not feeling good because she keeps asking her big sis..."you OK" "you OK" i love my girls! they are down for a nap so its time for me to get some rest i think I'm going to climb in Lani's bed and sleep in there room. Hope you guys have a great day!
Ever since that very first day Makaylah had a seizure I worry about both the girls alot more. I wake up many more times in the middle of the night and just check up on the girls to make sure they are both OK. There has been many times where it crossed my mind... what if Lani ends up having one then what? would I be able to handle it if both my daughters were going through that. One of my biggest fears is that ill be sleeping and I wont be there to help them.
Like I said Makaylah hasn't had any seizures since I believe June but we have notice a change in the way she acts and behaves. Alot of that we think has to do with the meds shes on. she is not the little girl I remember before it all started. she was a very calm, happy, never really fussy little girl, always smiling. there would never be a day that went by that she wouldn't be happy and smiling, that has all changed. she gets upset very easily, gets very fussy, and pulls my hair and her little sisters hair every single day. we have taught Lani not to hit makaylah or push her away when makaylah does that to Leilani instead we tell her to move away from her and go somewhere else. when Makaylah gets mad at herself she will bite her hand and sometimes pull her own hair and this happens almost every single day some days are worst then others. I wish she was able to tell me whats wrong but she doesn't really talk she knows about 10 words and some sign language so its very hard to find out what she wants or figure out if something hurts.
she was born November 4, 2007 she was 7lbs 3oz. no complications at birth and a natural birth. The doctors don't really know why Makaylah ended up having cerebral palsy but, i did have a little accident when i was about 7 or 8 months. I had fallen down two steps and landed on all fours i don't remember if i hit my tummy when i fell but i do remember my hands caught the fall. i wasn't in any pain but i was so scared something happen to her that i called my doctor. Since i was in no pain or not bleeding that there was really nothing they could do so i should just wait to be seen at my next doctors appointment. when that day finally came they still didn't see anything wrong with her or me so they couldn't do anything and they told me i shouldn't worry about it. I guess maybe they were wrong but no one really knows.
Lani on the other hand was born march 11,2009 9lbs 4.2oz no complications but i did have to get an epidural because i really couldn't take the pain i was trying to wait as long as i could but also because Jon kept asking me "are you sure..are you sure...BABE.. ARE YOU SURE " lol later on he told me that he was just making sure i was sure so later on i wont say you never said anything and give him a hard time about it :) i will admit that i was so scared that something would be wrong with leilani too. thank goodness there wasn't anything wrong, very health baby. leilani was a fussy little baby totally opposite from makaylah when she was a baby. She is very smart and independent some times to independent. she likes to do so many things on her own and I'm not use to that at all because I'm use to doing everything for makaylah that i want to do the same for leilani. she counts to 10 and almost knows all her ABC! My little helper, i call her.. she helps me with makaylah. she brings me Makaylah's shoes and her AFO'S (leg braces) and helps me push makaylah when we have to take her to the doctors. Leilani has taught her sister so much and is still teaching her so much every single day, I can just imagine how much more Makaylah will learn from her little sister.
For a three year old little girl Makaylah has been through a lot and i know things could be a lot worst, i just wish she had somewhat of a normal life...
A little after she turned two our world was turned upside down. I remember that day really well.It was late in the evening and it was almost time for the girls to go to bed. Leilani had taught makaylah how to crawl up two steps. They kept going up and down and laughing at one another because they can actually do something together. By that time it was time for there bath. I gave Leilani a bath first got her dressed and ready for bed then it was monkeys turn in the tub. I started to wet her down when I notice something was wrong, makaylah was not giggling like she normally did when she was in the tub, she was very quiet and just sitting there. the next thing i knew makaylah put her head back and her eyes were rolled back i yelled out for Jon(my boyfriend)by that time i had grabbed her from the tub so she wouldn't fall in the water. i had her in my arms and felt her whole body shaking, for some reason it clicked in my head that she was having a seizure. i had never seen someone have one just had heard what happens when people have them and what you should do when someone is having one, lay them on there side don't hold them and just let them ride it out. i called 911 by then and the lady was telling me exactly what i should do which i already had done. It felt so long before help came i was so out of it. If it wasn't for Jon to try and calm me down i would of really had lost it. since it was her first time ever having a seizure we spent a few days in the hospital because they had to run a bunch of test and monitor her to make sure she doesn't have anymore. The Doctors finally told us she had a febrile seizure.it was her first but it wouldn't be her last. after she had her seizure at home when paramedics came that night her temp got to 104'f. she was not sick had no fever at all that whole day she was happy and playing and just being herself.i couldn't even remember the last time she was sick before then. from that day on makaylah would get seizures first then she would end up getting sick. we have been in and out of the hospitals because its harder for her body to fight what ever shes sick from. she was on Phenobarbital and is now on levetiracetam (generic for keppra)the reason why she is on the seizure med. is because of this past June, she had several seizures and was not even sick or ended up getting sick after having them. she hasn't had anymore since June so hopefully she stays that way.
My name is Elva and decided to finally start Blogging! I'm very happy that i started to write again just upset that it just took me a while. i was debating so much about it because I'm not a very good writer but hey it doesn't hurt to try, right? so I'm going to warn you ahead of time..I'm not a very good speller and i might not put the comma or period in the right spot so I'm saying sorry now :) OK lets get down to getting to know my family and myself...
I'm a 26 yr old stay at home mom of two wonderful girls, Leilani age 2 and Makaylah age 3. I wanted to start writing to talk about my daily life with my girls and to talk about having a child with special needs. It all started when makaylah was three months old she was a very quiet baby never was fussy and i always wondered if it was normal. Everyone would always tell me that it was normal every baby is different so i just brushed it off but, when it took her a longer time to hold her head on her own or to flip from tummy to back or to even look at me whenever i would call out her name I just had a very bad feeling something was not right. At nine months we found out makaylah had a mild case of cerebral palsy. I had never heard of that before I had no clue at all what that was or meant. The Doctor was trying to explain to me what Cerebral palsy was but everything she was telling me i just didn't understand at all. Maybe i didn't want to believe there was something wrong with my little monkey.(her nickname her daddy started calling her)As soon as i got home i went on the web to see what i could find the two things that caught my attention was the seizures and the part about having a hard time walking or wont be able to walk. I started crying by then, so many things crossed my head so many things i just didn't want to think about....its taking her a longer time then most kids to do things but she is getting there and works very hard to do things. I'm so proud of her she has been through so much and is still going through alot.
IT does get very hard at times because i feel like i give more of my attention to makaylah then i do with leilani and i hate that very much but, Now its a little better because makaylah started going to school so that's mommy and Lani time. Now leilani on the other hand has been my little helper :) she has been teaching her sister so so much!. when Lani was 9months she started to crawl and makaylah got so upset one night to the point where she learned to do the army crawl. At 10months Lani started to walk and again makaylah got so mad because she couldn't be at her level that she started to pull her self up and started standing (while holding on to something)on Christmas eve makaylah started to walk! leilani was so happy she started screaming with laughter. that was the best Christmas gift i could ever get! I'm going to end my blog for today with a happy ending. I'm very new to this and don't really know if I'm even doing this right lol. but, I'm here if anyone has any questions or just wants to talk maybe we are in the same boat or not but i would love to hear from you guys. have a great night and i will pick up tomorrow where i left off.
